Tag Archives: bereaved mothers

Duetting: Memoir 20

Duetting: Memoir 20 Robin Botie of Ithaca, New York, photoshops a peaceful loving moment between her children when they were young and constantly in competition.

They are out there, all around us, even here in small-town Ithaca. Around every corner, at the mall, strolling on the Commons, in Wegmans picking through the tomatoes. There are more and more scarred young women with denuded brows, wearing head-wraps to hide tender skulls, pristine and bare like babies’ bottoms. Is it just me noticing the increase of these brave veterans of private wars? I can picture entire armies of these women, these chemo-hardened warriors. At one time I would turn away, unable to look at anyone who looked like a cancer patient. But now, as when my son Greg joined the Army and I’d practically hug anyone I encountered wearing digital camouflage, I find myself drawn to these cancer-surviving women. They are my cousins, my family. We are blood relatives: I’m giving blood; they’re getting blood. They are my tribe, along with their mothers.

Blood donor, mother of two, Marika’s Mom, Army Mom, lifeguard, caregiver, lifelong student, artist, small business owner, teacher … in February 2012, I consider my various past roles, wondering who I am now and what’s next. Since my daughter died, women reach out to me; some I know and some strangers. They tell me they lost a son, or their daughter died too. They hug me. Welcome to the club, this is forever, they say. Bereaved Mothers. Our stories have similar endings. Our bonds are quickly cemented solid. Unlike the land-mined deserts materializing between me and all my friends who still have daughters. They are taking them to Cancun or Paris, while I am putting together a solo trip to Australia to scatter Marika’s ashes. My life is out of whack. I’m not prepared for any of this. How can I begin a new journey? Begin anything?

In the fall of 2008, Marika had wanted to hide her scars, the telltale signs of a cancer survivor. Hairless, exhausted, foggy from the chemo—it was not the way she wanted to begin college. But she needed to get on with her life. And I had my teaching job to get back to. The summer that wasn’t, was over. We thought normal was just around the corner, the cancer gone. So we focused on the logistics of her living in a basement dorm room, using a shared bathroom, and being in contact with thirty-five hundred students coming down with countless ailments just when her white blood cell count was due to crash from the chemo. She carried on with her classes wearing headscarves, make-up, and large dangling earrings, pretending to her new friends and teachers that she was not sick. Except to her friend Jake.

“Mom, I met that guy. Jake. The other freshman who has cancer,” she called during the first week. “On Saturday we’re going to Boston to- ”
“Did you go for your blood draw Monday?” I interrupted, meaning to get back to Jake, whom I’d heard about and hoped she would meet.
“Yes,” she barked back.
“Did you tell your instructors you’ll be gone for two weeks? Will they email you the notes and assignments? Are you eating?”
“Mom!” Over the phone, from three hundred miles away, the sound of my name was like gunshot. Retreating, I stifled my barrage and forgot to come back to the topic of Jake.     

Shortly after Marika got back to school in Massachusetts, brother Greg transferred from his army base in Washington State to Fort Drum in northern New York, about three hours from Ithaca. He drove home each weekend in less than two. The oncologists did not think Marika would need a bone marrow transplant but Greg, eager to deploy again soon, wanted to have his blood tested to see if he was a match, just in case.

My children had guts. I felt like a wimp next to them. She was fighting for her life with fevers over a hundred-and-four. He was flirting with death in far off deserts filled with improvised explosive devices. And I got on the phone or emailed almost daily to ask if they’d eaten enough protein for breakfast. They were anchored in their real worlds and I was the dizzy planet that orbited light-years off in the vast space around them.

They’d rarely been in agreement until he shipped out to boot camp. He was always a warrior. Or, more precisely, he had learned to fight to hang onto his share of the attention when his sister was born. She would wave her tiny clenched fists in his face when he peered into his old crib to find the sweet playmate he’d been promised. Twenty-two months apart in age, when Marika was three Greg cut off a chunk of her hair and she walloped him. He destroyed her doll; she walloped him again. She adored him but he’d storm into her bedroom late at night, whooping a war cry, and she’d wallop him on the spot. And then Greg would barely contain a gloating grin as she got punished for walloping him. There was constant competition between them.

“One day you two are gonna be best friends,” I’d say and they’d look at me like I was wearing dirty diapers. For many years, Marika was the big strong one, but Greg was fearless. He fought me and his father, his friends and his sister, long before he grew to be six feet tall and was called to Iraq and Afghanistan. As a teenager itching to get out of small town Ithaca, he teased the local cops, tearing through the streets on his bike. When he got his license he tore through town in his father’s truck, or in a girlfriend’s mother’s sedan, ripping up lawns and shearing mailboxes. Through an early-entrance bonus program he entered the army during his last year in high school, and trained in paintball combat with the recruiters on weekends, until he could graduate. Desperate to get going on his career, he was a displaced soldier, a total misfit in the liberal college-town of Ithaca. Marika and I were proud of him, but we worried about the trouble he could get into when he was home, and fought nightmares of worst-case scenarios when he finally deployed.

What does it really mean to be a soldier, I wonder? Soldiering, like lifeguarding, involves a lot of standing guard and protecting. Soldiers fight fiercely for causes, often destroying lives in the process. A lifeguard’s main mission is to save lives. Lifeguards stick around in one area, ever watchful to avoid disaster, while soldiers are always saying goodbye and leaving, heading off towards the thick of danger.

Long ago I lived with another soldier, loved him, and so many times watched him go out into the uncertain world. My father. He had been in the army during World War Two and was climbing the ranks in the Civil Air Patrol as I grew up. I’d spend hours following him, observing his carefully coordinated movements. I’d run to the door with the barking dog to welcome him home each evening, and made it my job to be up at six every morning to see my first soldier off to work.

Early one morning the boiler exploded in the musty basement of our Long Island ranch house. My father gathered up his three daughters and our mother into a far bedroom, and then led the fire brigade up and down the stairs to the scene of the disaster where it was not yet clear if the emergency was over. Strong and courageous, he was the one I wanted to be like. So later, whenever it was my turn to face danger, even though I was terrified, I tried to do what I thought my father would do: get tough and let nothing get in my way.

Soldiers tread the shaky ground between life and death. It is not always prudent for soldiers to ponder too closely their proximity to death; it’s more feasible to press forward with the mission at hand. When my son was about to leave for his first deployment, he went to say goodbye to our beloved family friend Andrea, the Montessori School directress.

“Greg, are you prepared to die?” she asked. Maybe it was like a small grenade bursting in his head, giving him something to think about. That’s how it hit me later, as his mother, when I heard about the conversation and tried to imagine how anyone could ask this of a soldier going off to war. That’s Andrea. She’s another lifeguard, caring for young lives in her small corner of the world. But unlike me, she wasn’t afraid to question what she didn’t understand.
“Yes,” Greg had answered her. And later, in Iraq, he missed death by mere minutes, inches, and the luck of being put on the fire squad that entered the building next to the one that was rigged.

No one ever asked me if I was prepared for a child of mine to die. Or I might have joined the Smother Mothers tribe, and clung desperately to all my beautiful soldiers, slowly strangulating the life out of them myself.

 

 

Duetting: Memoir 7

Duetting: Memoir 7  Robin Botie of Ithaca, New York, photoshops a tattoo onto a photo of the face of her daughter who died.The young friends, at their own celebration of Marika’s life directly following the memorial, mull around in tight groups. They touch the photos and memorabilia. They hug and hold each other. Several had gotten tattoos to honor Marika. Images and words etched onto arms and ankles, pigment mixed with blood. Some small part of Marika could be carried forever.

As soon as she was old enough to forego parental blessings, Marika got a cookie-sized Celtic knot tattooed onto her stomach. I’d always questioned my children, “What could you possibly put on your body that you’d want to have there the rest of your life?” Horrified by the idea, I would confront them using the word ‘permanent’ as if a tattoo was a perpetual stain on one’s presence. Not that anything, loved or loathed, could ever be permanent.

In May, two months after Marika’s death, for her birthday, I had her name tattooed on my left shoulder in Celtic letters. Greg, who’d already had a good deal of himself inked with warriors and skulls in homage to his fallen army friends, added a part of Marika’s Celtic knot to his haunting skin-story. Rachel got a Marika tattoo. And Kim. Then Taylor. And Julie. Even Laurie flew to Ithaca to get one from our now almost-family tattoo artist. The thought of our hearts and bodies indelibly etched with Marika was suddenly comforting. Bereaved mothers, other than wanting their beloved children back, want nothing more than to have their child remembered. So I loved those tattooed friends.

But at the end of June, one of Marika’s friends is found dead from an overdose. Several are heavily into drugs and alcohol. Marika had fought for each summer and for every breath in the end. Even though I know addiction is not a choice, I want to grab hold of her friends’ necks and shake them.
“This is it! This is your only life. It’s a time-limited offer. Non-refundable. It is a gift,” I want to shout. “How the hell do you get to throw it away?” I think of the parents, because to lose a child is to lose the center of your world. It is to lose your light and breath. “Look at me,” I wish I could say, “It’s June and I’m still frozen mud in midwinter. Like concrete. I died too. Would you do this to your parents?”

And then there are Marika’s words. Words I can’t ignore now that I’ve found them. She wrote this before she even knew she had cancer. Before there was any doubt of her not living a long full life. What am I supposed to do with these words? They scream to me:

“My words will hopefully live on long after I am gone. That is how I want to live. Forever. Words are immortal.”

Australia Trip: Beyond Appearances

Robin Botie of ithaca, New York, hops around a barricade that conceals a construction site in Adelaide, on her recent trip to visit with bereaved mothers in Australia.“I’m kinda nervous about this,” I confessed to the leader of the tour group, as I waited for the stranger I was to drive off with. Before going to Australia I’d put out pleas on Facebook to meet up with Australian bereaved mothers on my free days, “to make my trip more meaningful.” This was my first. Dianne. Complete stranger, all I had was a name and phone number. She had messaged back, “No worries, hun,” to everything I’d written, which made me feel icky, reminded me of extinct relationships with men. But when Dianne pulled up in her shiny black RAV, I plopped into the passenger seat, and immediately knew I’d found a sister.

“Where d’you want to go?” she asked. Envisioning a peaceful quiet place to talk, I replied, “Can we walk along the Yarra River?” She took me to the Crown Casino.

She paid $50 to park in Crown’s endless garage below the snazzy scene of casino, hotel, shops, and restaurants. Huge dripping chandeliers, Prada, expensive jewelry displays…. As we trotted by I snapped photos of the colorful lights and our distorted images reflected in the mirrored facades of slot machines. I wondered if photographing was permitted in the casino. Trekking up and down escalators and elevators, we finally found ourselves outside, on a boardwalk lined with oyster bars and ritzy cafes. There was the Yarra.

We strolled, sharing the stories of our kids who died, and then sat on the edge of the Crown dock with our feet dangling off the edge. It didn’t look like the quiet clean river I’d thrown a good portion of my daughter’s ashes in, five years before. An old, bloated tennis ball floated by. It didn’t feel at all like I was littering when I tossed in my daughter’s dolphin necklace and tiny gold ring.

At a nearby outdoor café, I bought lunch for almost double what Dianne paid for parking. As we sat, a butterfly hovered between us. Long enough that I suspected one of us would get a visit from The Beyond. It was a butterfly like no other I’d ever seen. Giant. Rugged, like a moth. Its colors, blues, browns and gold, matched Dianne’s outfit perfectly. It flitted around her, and finally landed near her heart. The butterfly rested there, like a precious opalescent brooch. And then it perched on her hand. I snapped photos.

As we retraced our path through the casino and the dazzling courts of the palatial Crown to the RAV in the depths of the garage, I clicked away until we drove off to my hotel.

And when I got back home after my trip to Australia, I found that all the photos I had taken that day with Dianne disappeared. The picture you see here of me hopping around barricade panels concealing a construction site was taken by the next mother I met up with, two days later, in Adelaide. Miserable, in disbelief, I took my camera cards to various technicians but they found no trace that I ever took photos that day. I still see them in my head. The casino lights. The butterfly. The Crown chandelier shining, like starburst. All ghosts now. But so clear in my mind, I sit at my computer, stunned, still awaiting their appearance.

Australia Trip: Some Things I Didn’t Anticipate

Robin Botie of Ithaca, New York, photoshops a stuffed puppy before it is cremated and its ashes tossed into the waters of Manly Beach in Sydney, Australia in a ritual for healing.As much as you plan, you can never anticipate everything. Good or bad, other things happen.

I’m back home from Australia where, on days off from my O.A.T. tour, I met up with Australian bereaved mothers I’d found and friended on Facebook. On my last full day in Australia I was to cremate my daughter’s stuffed toy Puppy and scatter its ashes. Knowing I’d need help, I’d reached out to The Compassionate Friends NSW Chapter in Sydney.

Things I had not anticipated:

The generosity of my hostess. Jenny from TCF NSW spent the whole day with me, picking me up at my hotel, and then trekking, training, and tramming our way to the University of Technology Sydney (where, if my daughter had survived cancer she would have attended the nursing program), and Spice Alley, and the headquarters of Sydney’s TCF chapter where we attended a support group meeting. After, Jenny took me to her home for the cremation, and drove me out to Manly Beach. I had not realized how much time and energy my mission would take.

How Jenny had prepared for Puppy’s cremation. She’d lined a small fire pit with foil. She’d set out tongs and a box of tissues. And a tin for the ashes.

How she’d thought of everything except matches, to start the fire. Jenny rummaged through the house while her dog, a big mellow shepherd-mix, looked me straight in the eyes. I let him sniff Puppy, and he nuzzled me sympathetically.

The acrid, chemical smell of the burning. It turned out that stuffed Puppy was made of polyester. She went up in flames faster than I’d imagined. She burned longer than I would have guessed. There was dark smoke. In the end there were no ashes, only black molten chunks. Less volume than I’d thought. So instead of using the big tin, Jenny washed out a dogfood can. I peeled Puppy’s remains from the foil, placed it in the can, and smashed up the chunks with the tongs.

How sad I felt during the car ride from Jenny’s house to Manly Beach. Sadder still, wading into the gentle waves and tossing Puppy’s remains. Then I watched in horror.

Puppy’s black molten chunks floated. At the top of the water. Instead of sinking or dissolving.

There was other black chunky stuff floating around so I didn’t feel too terrible about polluting.

The traffic as Jenny drove from the beach back to my hotel. The rain that held off until my mission was all over.

The emptiness that stung me later that night as I said goodbye to the city lights of Sydney, and whispered goodnight to my daughter, and to Puppy.

The warm gratitude I felt, remembering the long full day Jenny had given me.

Lastly, I hadn’t known gratitude, sadness, and relief could sit so peacefully together, all mixed up in my heart.

 

More to come in the next few weeks about my trip to Australia.

From Strangers to Friends

Robin Botie of Ithaca, New York, photoshops hands reaching out over a scene of brick wall and staircase.“I’m at the bricks. Just keep walking toward the pavilion. I want to show you my son’s brick,” a new friend said when I phoned, confused about exactly where we were meeting up in the park. My daughter’s favorite spot in Ithaca, the Stewart Park Pavilion was a place I thought I knew well.
“What bricks?” I wailed into my cell phone, “Where?”

“Right there,” my friend pointed proudly, when we finally caught up. A cozy corner I hadn’t noticed before was paved with donated bricks, a fundraiser for the park. We stood together admiring the brick engraved with her son’s name. Zacariah. She was telling me the story of how they’d misspelled his name, when suddenly my eye was drawn to another brick. One brick away. Right there, it said, Marika Warden. My daughter. I stopped breathing. For a second I didn’t understand what I was seeing. Someone, probably her father, had dedicated a brick to Marika. And one more brick away from that was a brick for my son who is still alive and thriving on the other side of the country.

You wouldn’t think a few little bricks could deliver such joy. But for a mom, the most wonderful thing is to know her children are loved and remembered. My friend and I stood there marveling at this new connection. “It’s like we’re neighbors,” I said, “like family.”

That was just days ago. And here I am getting ready for my trip to the other side of the earth, to Australia. Responding to my posts, several bereaved mothers from Australia have been popping up on my Facebook pages and online support groups. We’re making plans to meet up during my travels. Warmhearted women. They’ve reached out across cyberspace sharing the stories of our children. Some of us watched the life wane out of our kids’ eyes from addictions or cancers. Others got the dreaded phone call that ended their worlds. We were strangers. Until we shared our stories.

And while I’m counting the days until we meet up in person and discover things we have in common, I realize that bricks can hit you hard on the head or lead you to places you might never have found on your own. And maybe the coincidence of the brick at Stewart Park in Ithaca, New York, is a forerunner to what lies ahead in Australia. I have to wonder, how many bricks away from each other are we all?

 

 

Grief is a Grinch

Robin Botie of Ithaca, New York, helps bake cookies for the holidays.“And I’m invited too?” I demanded of my friend when I learned that she and my other best friend were going to bake cookies together on Saturday. Not usually this bold, I was following three of the Holiday Tips for Grievers I’d found online: “Take breaks from your grief,” and “Don’t isolate yourself,” and “Tell people what YOU want to do for the holidays….” So I invited myself.

All over the Internet, bereaved and depressed people can find advice on how to deal with the holiday season. “Take care of yourself.” “Be honest. Listen to your heart and be mindful of your own needs.” “Do what feels right for YOU.” “Protect your physical and psychological energies.” During this time, online publications from Huffington Post to whatsyourgrief.com essentially grant sufferers permission to turn into self-centered, entitled grinches.

I don’t even like cookies. But I do like being in the kitchen when my friends are cooking. I will wash a million dishes in order to watch friends make extraordinary food. Also, my daughter who died liked to bake. So on Saturday, I helped stir and pour batter, and cleaned dishes. All afternoon we sampled fresh warm cookies as they came out of the oven. And we talked, sipping on scotch and wine.

I listened to various complaints about daughters doing things or not doing things, and thought, My Marika used to mess the kitchen up miserably when she baked cookies. There was also proud praising of the same daughters. Marika made the best cream cheese-frosted carrot cake. If Marika were still alive … I thought to myself. I tried not to mention my own daughter out loud. Because these were my old beloved, “regular” friends, not the newer friends who are other bereaved mothers who understand the need to talk about my daughter, to hear her name. A holiday tip for grievers suggests you find ways to include your loved ones. I ate another cookie, silently toasting Marika.

Then the discussion turned to someone else’s daughter who was recovering from physical problems and wouldn’t be able to play sports for a whole year. That’s when, no longer able to contain my physical and psychological energies, being honest with myself and mindful of my own needs, and doing what felt right for ME – I said, “Well at least she’s still alive,” – and effectively ended all conversation.

 

How have you grinched-out during the holiday season? Did you decorate? Or did you decide it was time to let dirty dishes hang out on the counter-tops?