Tag Archives: angelversary

Duetting: Memoir 68 Epilogue

Duetting: Memoir 68 Epilogue Robin Botie of Ithaca, New York, photoshops herself and her daughter who died wearing masks like they did back in the days of cancer and caregiving, and took precautions similar to those taken for the COVID pandemic.

On the tenth anniversary of Marika’s death, in the spring of 2021, I am once more about to re-enter a changed world. Gently, my dead daughter drags me from the table where I’ve been blogging and Photo-shopping for almost a decade. It awes me to consider Marika’s been dead for ten years. Dead but not completely gone, some remnant of her now coaxes me from the house and down the long rocky driveway to where it meets the highway.

At the beginning of 2020, I had wanted to be out with people more, to spend less time and energy writing. So, instead of having to come up with new material each week for my blog, I started sharing the manuscript I’d already written about our journey through the wilds of cancer. Over the course of the year I broke up the 200-page/21-chapter memoir into weekly blogs and Photo-shopped illustrations for each, “Just to keep in touch [with my readers] while I venture out to discover where life will lead me next,” I wrote in the first entry. Then, shortly after I began, the world broke out into the COVID-19 Pandemic. Life, as I knew it, ended once again. And I was stuck social-distancing at home, alone with Marika’s ghost, her dog Suki, my computer, and my manuscript. Reflecting on this difficult past year, I believe that what kept me going was the rewriting, illustrating, and sharing of our stories, with Suki and the sweet ghost of my daughter by my side.

This COVID thing. It takes me back to the days of cancer and caregiving, when Marika and I wore masks and avoided crowds, always fretting about germs. That was when I first learned to sing the birthday song twice-over while scrubbing my hands. I would scrutinize everyone we came into contact with for any signs of infection or possible contamination. Living with cancer was so lonely back then. If only we’d had Zoom. Marika would have been endlessly zooming parties from her hospital bed. Maybe I could have zoomed my son and Laurie instead of burying my head in novels so much of that time.

Because of the novel coronavirus, I haven’t seen Greg in well over a year. He texts and phones me regularly from California where he works in executive security. I am so proud of him, employed and keeping up his own apartment during these chaotic times when so many sons and daughters are struggling. “There’s always a place for you here,” I tell him, in case things change.

Laurie phones me. And sends gifts through the mail. She still practices medicine but works online at her home these days. I miss her and look forward to the day my sisters and I can all get together again in person.

And Rachel. I mean Ray. On the eve of the tenth anniversary, Ray texts me from his cozy home in Florida, “Sushi tonight,” and I text him back, “Sushi tonight and tomorrow. Wish it could be with you.” Ray is a very handsome man now. He’s worked hard to find himself and make a good alcohol-free life. Yet he readily talks about his beginnings. And when I mention the dream I recently had where he was still Rachel, he told me he sometimes dreams of himself in his old life as Rachel, as well.

My friend Liz is my COVID buddy. Throughout the pandemic we have shared meals in each other’s houses and formed a tiny safe pod to get through this time. On the morning of the tenth anniversary, we mask up and meet at Ithaca’s new Trader Joe’s where she tells me first thing, “You have to buy flowers for Marika.” Then I shop like in the old times, bringing home more than I can possibly stuff into the freezer.

Suki, my inherited dog, is eleven years old now. My constant companion during the pandemic, she’s still hiking with me several times a week in the remote hills around Ithaca. It’s eerie how Suki often stares intently out across the living room, tentatively wagging her tail as if she maybe sees the shadow of someone she once knew and loved. If Marika were to actually appear, that dog would go ballistic jumping and a-leaping, dog-kissing her and squealing in joy.

As for me, I try to be One Tough Cookie, an expression of my mom’s I adopted after she died two years ago. I don’t want people to look at me and see only the pathetic Mother Whose Daughter Died. Okay, I do now-and-then nosedive into my grief, needing to wallow in the pain. And sometimes a song or smell will trigger me into a meltdown. But most days I’m filled with gratitude. Even during these COVID times, the life I lead is one I love, is one Marika would be proud of, is one she would have loved to live herself. I am the Mother Who Swallowed Her Daughter. There’s something of her in me now that soars at each opportunity for adventure, that sings in the car on the way to and from home. I now view the world through two sets of eyes, Marika’s and mine. And I carry her with me in joy as much as in sadness. 

I’m still on the fence about religion and heaven. And angels. And where one ends up after dying. My best friend from childhood, who discovered God and became an ordained minister over the decades I lost touch with her, told me God is everything, is in everything. That works for me. To me that means God is in Marika. And that makes me less embarrassed about admitting that these days I pray mostly to Marika. That’s not meant to sound irreverent. But maybe if we all connected the people around us to God in that way, we’d end up treating each other a lot better.

It took me four years to even consider joining a grief support group. One day I became a volunteer making bereavement phone calls for Ithaca’s Hospicare and Palliative Care Services, and shortly after, I began attending a child loss support group through Hospicare. That group eventually became the Ithaca Chapter of The Compassionate Friends. TCF is a peer support community for families that have experienced the death of a child, at any age, from any cause. Through TCF, we see the many different ways to live—with and without—our children who died. A dedicated member, when I realized there were other bereaved parents having problems socializing, I organized an offshoot of our local group to gather over monthly potluck dinners at members’ homes. All these get-togethers have had to operate via Zoom during COVID. And that is how I ended Marika’s tenth anniversary day, zooming with good friends who “get me.”

In November 2017 I returned to Australia. Traveling solo again for that trip, I met up in Adelaide, Melbourne, and Sydney with other bereaved mothers I’d found and friended on Facebook. Bonds formed easily with these strangers on the other side of the planet as we shared our stories and photos. And in Sydney, after giving me a tour of the city and the university Marika was to attend, TCF New South Wales president Jenny Wandl brought me to a monthly TCF meeting before taking me to her home to cremate Marika’s stuffed Puppy in her outdoor grill. It turns out Puppy was made of polyester, not cotton. So her remains were hard black chunks rather than ashes. Which reminded me that we’re all made of tougher stuff than we think. With Jenny’s help I scattered what was left of Puppy in the rocky shallows of Sydney’s Manley Beach. Being non-biodegradable, perhaps Puppy’s remains are still floating there among the rocks.

In the winter of 2021, I got the two COVID-19 vaccinations, each time holding tight to the memory of Marika grabbing my hand whenever she got a blood draw or injection. Sometime after my second shot, I woke up early one morning having dreamed of her. But it wasn’t the dream that woke me. I heard her say, “Mom,” her voice, spoken distinctly, close to my ear as if she was standing right over me. Just the one word, “Mom.” It was almost physical, like I could feel the breath in it. In over ten years I had not heard her voice so loud or clearly. And Marika’s voice didn’t fade like most dreams fade. It kept me smiling for weeks. I can feel it still.

I don’t know what’s next for me. It’s been cozy and safe, staying close to home. But almost daily, something of Marika drags me out into the world. On the news now they’re saying vaccinated persons no longer need to wear masks. I’m still wearing mine around my neck and keep an extra in my purse, but the Marika in me is already tearing it off and applying Very Berry Lip Gloss. She tells me, “Mom, I want to eat INSIDE a restaurant,” and has me checking out menus online. With her encouragement, every day I inch out a bit further from the house in one direction or the other. No longer rolling her eyes at me, in gentle prodding she says, “Mom, get a life. It’s time.”

 

 

 

 

From Grief to Gratitude

Robin Botie of Ithaca, New York, photoshops friendship bracelets around a photo of her daughter who died of leukemia being hugged by friends.Saturday was my daughter’s sixth angelversary. Angelversary is the name bereaved parents often use to gently refer to the date of a child’s death. It marks the day a son or daughter became an angel. Or the day they took up a heavenly abode. I’m still on the fence about heaven and where one ends up after life. And Marika was no angel. But these wretched anniversaries wreak a range of emotions. What bereaved mothers and fathers really want, besides having their children back, is to know their child is loved and won’t be forgotten.

The first few angelversaries I was immobilized with fear and dread, wondering how I could survive the day. Then there were years when I obsessed about exactly how to commemorate such a time: to turn off the phone and stay in bed, or line up back-to-back meet-ups with friends? To curl up and cry? Or celebrate Marika’s life with balloons and butterflies?

“I’m declaring a personal holiday,” I told a bunch of other bereaved parents last week. “I’m going to party and drink and do all the things she liked to do. I’m gonna be really good to myself. Cake. Chocolate. Hiking with my daughter’s dog. I’m going shopping.”

I was going to write about all those things. I was looking forward to barging into the day full force, like my daughter would, feasting on the beautiful free time to do anything I wanted. And then, first thing on the day of Marika’s sixth angelversary, I felt a desperate urge to grab onto my grief again. I needed to drown in sorrow. Feel pain. Cry. Maybe so I could remember how much I loved, and how much that love costs me still.

There was a box of Marika’s photos. The ones from her last years. I knew they would fuel a major breakdown. What I didn’t know was, after the deluge of tears from seeing dozens of photos of Marika being held and hugged in the middle of friends, how grief could melt into gratitude. It warmed me as much as the cocoa, the chili, and the good cheer I found the rest of that day among my own friends.

All the beautiful, wonderful friends. Hugs to those who keep me going. And brimful thanks to everyone who filled Marika’s life with love. She was no angel. But she was loved.

 

How do friends keep you going? How do friends keep you grateful?

 

Birthdays and Death Dates

Robin Botie of Ithaca, New York, Photoshops a snapshot of her daughter who died of leukemia as a newborn baby with butterflies and rubber ducks.“Mom. I want chocolate cake. For breakfast,” my daughter, who died five years ago, announced as I awoke on the anniversary of her death. A large leftover piece of the cake I’d brought to friends the night before, to acknowledge the March deaths of our loved ones, sat in the fridge.

My daughter’s will, always stronger than my resolve, lives on within me. Birthdays and death dates are times I’m most likely to give in to her way. “Chocolate cake, mom. With ice cream. And whipped cream. For breakfast. By candlelight,” the details grew more specific the closer we got to the kitchen. That’s how the day began.

For weeks leading up to her angelversary, I’d whined and cranked in dread of that day.
“How would you commemorate your child’s angelversary? What do you do on the deathday of the one you love?” I’d put out desperate pleas on Facebook pages.

“Listen to your daughter. What would she want?” People had posted back long lists. “Sing, play her music, light candles, eat her favorite foods, share stories about her with those who loved her, release balloons or butterflies, give gifts to others, make a donation in her honor, do random acts of kindness, …look at her old photographs.”

So I did. And I had a picnic by the lake, and attended an exercise class at our gym.
“Mom, you’ve got your bathing suit on under your workout clothes so let’s go swimming,” she said in the gym. We swam. Then we went shopping and bought a red sweatshirt, and I wore it hiking with my inherited dog. I did almost everything from the lists of things to do.

In the evening, I took her best friend out for sushi dinner since my daughter had loved sushi. The friend brought along another friend I hadn’t seen in a while, and this other friend had her newborn baby with her. The baby’s eyes were so like my daughter’s at that age. He seemed to be searching my face. I almost cried. But instead, when the friends went to collect their buffet dinners, leaving me alone in the booth holding the baby, I sang my daughter’s song to him, and drifted back into old times cuddling in sweet warmth.

The time leading up to birthdays and deathdays is often harder than the days themselves. The terrifying thing is that each anniversary takes you farther away from the times you were with your beloved. Another year gone by. Then another. And one day, the number of years without will outnumber the years with them. And the thought of them being forgotten is unbearable. It brings up the inevitability of one’s own death, the brevity of our time on this earth. The need to make each day, not just the special dates, count.

“So what was the best part of the day?” I asked my dead daughter later, as I walked her dog and watched the night sky.
“Holding the newborn,” she told me. And back in the house, I couldn’t go to bed until I found the snapshot I’d taken of her shortly after she was born.

 

What small magnificent thing will you do today?