Author Archives: Robin Botie

Duetting: Memoir 50

“It would take a miracle,” the ICU nurses said about the possibility of my daughter’s recovery. But we’d seen Marika pull off miracles before. They said, “Each day on the respirator lessens the chance of her ever getting off.” She’d been under for almost two weeks. Her lungs had not responded to the special drugs they’d ordered. So the Roc Docs used something called PEEP to force oxygen through. Then a hole developed in her right lung.

Her father and I had agreed we would allow no painful interventions, but when Marika’s right lung started to collapse, we let them shove a chest tube between her ribs. A day later, when the short-lived victory from that procedure dissipated and the left lung started to go, we allowed them to plant another tube through her left side. Nothing helped. Her lungs were shot. We continued to hope and pray past the time the doctors would have quit, pulled the plug, and sent us home.

“When you start to hear the same grim prognosis from the four different teams of doctors, it will be time to consider withdrawing life support,” our social worker said.

Withdraw life support. Is that how it was to end? Like this was an everyday procedure— you either produced a miracle, like she’d been doing for the past three years, and get wheeled out of the ICU to the unit down the hall—or you died amidst Code Blue chaos with staff shoving the family out the door before scrambling around to resuscitate and electrocute—or you got unplugged. I hugged myself, and begged my beautiful girl, “Do something, Mareek. Do something NOW.”

We’d never talked about the healthcare proxy. Armed with little more than that signed piece of paper, I did not know how to begin to guess what Marika would want. Would she want to live if she couldn’t sing or walk? If she were tethered to oxygen tanks for the rest of her life, stuck with feeding tubes forever, would she want to go on? What if she was trapped inside her head, could think but not communicate, could feel pain but not move? When it comes to considering death, people grab at every grain of hope, giving up more and more of what they once felt was important for a good life. I was grasping for anything. I’d take meager crumbs. The dregs. But what would she want? Would Marika sit, strapped to a wheelchair with an oxygen tank, living on memories, and feel life was worth living? And not fight, forever, for more?

“She wants everything possible to be done to keep her alive, unless it becomes hopeless,” Rachel said when I called to tell her I didn’t think Marika would make it. “She also told me she doesn’t want to cause more suffering for her family and friends.” Marika said that?

“We should put her on a DNR status, Do Not Resuscitate. So if her heart stops, she won’t receive chest compressions or electric shock to re-start it,” Laurie said. “That would only cause more pain from broken ribs and wouldn’t preserve the quality of her life. But don’t give up on her yet. Her blood pressure is good, her kidneys and liver are working well. Her blood cells and platelets are coming up, so the transplant is working.”
“So we just need a miracle to remedy the small matter of her blasted lungs,” I said.
“She’s been at death’s door before,” Laurie reminded me, “and has pulled out a miracle and survived.”

The Roc Docs said she was sinking. It was just a matter of time. It was not presented to us as a choice: to pull the plug or not pull the plug.
“No, not yet,” I begged on Friday when she’d been pumped by PEEP for multiple days. “Give her the weekend,” I pleaded, clinging to Marika’s feet and urging everyone to whisper, in case she could hear.

On Tuesday, the first day of March 2011, the seventeenth day on sedation, the four teams, one by one, filed in and out saying, “Sorry.” I clutched Marika’s feet and rubbed madly. I watched the life I had guarded for almost twenty-one years drift farther beyond my reach. They’d given us all the extra time they could to wish for a miracle, and over the weekend hope had ebbed away like a receding tide. A strong current was pulling me out into uncharted waters, to a place no one I knew had been before. Whose child dies before their parent? I wondered. How could this be happening?

“It’s time,” I remembered my father announcing at his end.
“It’s time,” the social worker said.
Drained and defeated, Marika’s father and I finally both agreed. I said yes, and signed the paper that said my daughter’s life was to be ended.

My bedside notebook for recording dreams caught only nightmares then: I was fished out of rushing water, dripping wet, and hauled up to the whitewashed docks above by a rope. Caught. I knew I didn’t belong there, that being there meant I’d be executed on the spot. I huddled, cold, wet and miserable, trying to make myself small on the hard dock while my captors considered me. A sympathetic one pointed to a place just above my tailbone, urging the other to shoot there, where it would be kinder. Closing my eyes, I waited for the shot to shatter my bones and end my life…. Later that day, I realized that the tailbone area was where Marika got her spinal fluids drawn and chemo injected. Maybe this was really a dream about Marika. Even in my dreams I had a hard time separating her ordeal from my own.

The second day of March was barren and gray now that we had accepted there would be no more miracles. I moved like mud. Heavy, frozen, lifeless mud. Marika’s life would be taken the next day and I had a dilemma: to tell her or not.

Even heavily sedated, she might be conscious on some level, or in and out of consciousness. But if Marika couldn’t say anything, couldn’t say goodbye or “I love you,” if she wasn’t able to express anything or even move a muscle, what would she do with this information? For the first time ever, her father and I agreed immediately on something. We did not want her just lying there, drowning in fear and anger, unable to communicate. So we whispered and tiptoed around her, holding her hands and head. I did not tell her she was going to die.

What is the bigger tragedy: losing your loved one suddenly without a chance to say goodbye? Or knowing your loved one is close to death and not talking about it? I did not know how to talk about it. So I just stood there, silently, stroking her face with my eyes.

Much later, I would find these lines crossed out, in a song in one of Marika’s journals:
“My mama strokes my hair and tells me I’ll be fine now,
‘We gonna take care of you.’ But her eyes tell me she’s hiding a lie.”

We’d had a conversation or two when she was very young, about how not saying something is like lying. So I was lying. I was not being honest anyway.

There was more. Worse. What, later, I’d give anything to be able to rewind and replay: I did not tell her, “I love you.” As she drifted farther away from me, I did not dare say it. I hadn’t said it enough. Does it mean more when you say it less? Does it mean less when you say it more? And what did it mean to my precious girl that I didn’t say it at that time?

Because if I told her then, “I love you,” she would know it was the end.

REPLY TO ROBIN

Duetting: Memoir 49

“What’s Middle Ground?” I asked Laurie, my sister-the-doctor, at the beginning of February 2011.
“Well, first of all, it’s not a medical term,” she said. “Basically, ‘Middle Ground’ refers to a shift in the treatment plan from an aggressive, do-anything-and-everything-necessary-to-keep-someone-alive approach to a more selective one. So, if Marika’s heart stops, we’re not going to shock it or pound on her chest, but if she gets a reasonably easy-to-treat condition (like a bladder infection or strep throat), we would go ahead and treat that. In a way, ‘Middle Ground’ is a bit like ‘Limbo’, the apartment Marika shares. It’s a place somewhere in between. Between knowing that you’re winning the war and when you get those first inklings that you’re going to lose. So you wait, in Limbo, for a sign, for some hint as to when or whether she can come up with one more miracle.”
“Oh,” I said, and Laurie could hear my dread.
“Middle Ground does not mean that anyone’s giving up,” she said, “but we all know it’s the first step toward that end, the end that no one is yet ready to acknowledge.”

So we were one step closer to that place into which I had not allowed myself to go. Outside, in the ground under the snow, tender tips of crocuses emerged into the wintry world before their time. They’d be gone before spring.

After the late night call from the Intensive Care Unit, when I got back to the hospital, Marika was floating in and out of consciousness. Sleeping Beauty, strung all over in plastic lines, was once again on center stage attended by nurses, aides, all types of technicians, and now, multiple teams. Besides the ICU docs, there was the somber cluster of oncology docs, a very animated squad of infectious disease docs, and a new tiptoeing team from Palliative Care. Bevies of doctors, social workers, and residents took turns entering and exiting her room, taking notes and quietly exchanging comments. A mysterious respiratory infection, they said; we wore masks and gowns around her now. No one really knew why her lungs were failing. When she became the least bit awake, she tried to speak. She yanked her cords and tried to climb out of bed. They gave her more drugs to quiet and contain her. She was fighting everything now.

“Please don’t speak to your daughter,” one of the nurses said to me shortly after I got back. “She is at maximum dosage levels for her sedation drugs, and when she hears you it is difficult to keep her sedated.”
“I can’t talk to her?” I wanted to make sure I’d heard right. In disbelief, I quietly rubbed Marika’s feet. But soon, when I whispered to a nurse, Marika heard me and woke. She pointed at me with an incriminating index finger, as if she could shoot a dagger straight through me. She lowered and then raised her hand, slowly, like a ghost, and suddenly gave me – The Finger.

The horrified nurse sedated her more. Hurt, and afraid of what Marika might do next, I kept quiet. But what I really wanted to do was shout to all the doctors and nurses, “Damn you all! She’s my daughter!” I moped for hours in a funk until I learned she’d given her father the same greeting earlier.

A day later, while I silently rubbed her feet, she opened her eyes.
“Mom!” she mouthed through her tubed and taped lips, looking straight at me. She extended her arms like she wanted to hug me. Her face scrunched up and turned red. Her mouth stretched the tape with a concave bottom lip. She was crying.
“Mareek,” I called, and left my station by her feet to step closer. “Oh, Mareek.” I reached out to hug her. But before I could touch her, the nurse stepped up the sedation. Marika’s eyes rolled back as her lids shut. Her arms dropped in slow motion. Her words, her thoughts, everything was snuffed out. I stood over the still form of my daughter, not able to remember the last time we’d hugged. In my mind I replayed the scene. She’d reached for me. Her eyes had said everything: “Mom, I’m scared. Hold me; help me. I’m sorry. Thank you. Mom, I love you.” I stared at her face and hugged myself, and returned to the foot of the bed. And then the nurse asked me not to rub her feet.

I was blind-sided. I stood there dumbfounded. Foot-rubs were my only connection to my daughter now. I couldn’t just let her lie there alone. She’d wanted to hug me.

Greg, on a tentative seventy-two hour notice to return to Afghanistan, came to Strong to say goodbye to his sister. Marika had known he was hired to go back as a security agent. But she was unconscious now and seemed to hear nothing. He didn’t stay long. He whispered goodbye and turned to go. Suddenly she lunged for him. She flew over the bedrails, tearing the lines that tethered her to the IVs. She grabbed her brother. In seconds, she was stopped and sedated some more.

Rachel arrived for a visit, and I darted out for a fast trip back to Ithaca. Rachel’s eye make-up, the tight skinny jeans and French-tipped nails made me realize how long it had been since I’d seen Marika up and dressed. I must hurry home, I told myself, to renew my driver’s license that would expire soon. Mostly though, I just needed to get out. I needed to drive far and fast.

Rachel ambled down the long hallway with a huge rainbow balloon trailing behind her. And two hours later, at the Motor Vehicle Bureau, I stood before a clerk who tried to get me to smile for the photo ID that would be with me for the next eight years. For eight years, my eyes in that photo would say, “Marika, we need a miracle now.” I faced the camera unable to think of anyone or anything else. Rachel sat with Marika and held her head, reading aloud the goodbye letter she had written, just in case. She drove back to Ithaca that evening, stopping at a liquor store for a bottle of Svedka Vodka to tide her over. I drove back to Strong early the next morning crunching on an apple to keep awake. The Big Meeting was scheduled with the Palliative Care team. So Greg drove to Strong, as did our social worker. My children’s father and his wife were already there. We were going to discuss The Middle Ground and “options,” things I wasn’t able to hear yet. I didn’t want to listen to any of these people. I just wanted to rub Marika’s red painted toes and watch for the tiniest twitch of her pale brow.

REPLY TO ROBIN

Duetting: Memoir 48

My daughter was measured and marked for radiation. In a waiting area down the hall, I chewed at my cuticles as Marika got the first of her full body radiation treatments. She had to be seared and zapped cell by cell in order to live. It made me nauseous. They wheeled her back to the room on a gurney and she napped the rest of the day as I sat, waiting in the dimmed light by her bedside. At dinnertime neither of us could eat. I gently rubbed her feet before driving off to Hope Lodge.

At Hope Lodge on Tuesdays I got free massages. Thursdays it was free dinners prepared by a group of med students. I took Bernadette, a cancer patient who lived there, out for port on her birthday, and watched another resident cook aromatic African dishes. In the afternoons I explored Swan’s German Market, the Public Market, the Monroe County Library, and Captain Jim’s Seafood, always bringing back some bit of Rochester for Marika. Each day I exhausted myself into oblivion. And then the transplant preparations got stepped up.

“Preparations,” Laurie said over the cell phone, “is really a euphemism here. What it really means is wiping out her blood cells and immune system with chemotherapy and radiation, and then ‘rescuing’ her with the donor’s cells.”
“Laur, what’s the deal with GVHD?”
“Didn’t you read any of the stuff I sent you?”
“I did, but it sounds better coming from you,” I said.
“Well, Graft Versus Host Disease is a fascinating condition. What can happen, just about any time in the first year or two after the transplant, is that the immune cells in the donor marrow can begin to attack the recipient’s tissues and organs. They still think they have to protect against ‘foreign invaders,’ and are totally clueless that THEY are the foreigners.”
“Yeah, they warned us it could get nasty,” I said, wincing.
“It’s her only shot, though. There are no more drugs capable of giving her a cure,” Laurie said. I knew that. I was still stuck on the part about the donor’s cells attacking tissues and organs “any time in the first year or two.”

It was snowing on transplant day, January 26, 2011. All morning long I watched outside the hospital window and checked online for weather-related transportation delays. Finally, midday, a courier delivered the stem cells in a picnic cooler. I collapsed on the end of the bed. Giddy with relief, I even smiled and joked with my ex-husband who had arrived with his wife and a cake. We gathered around to watch the donor’s blood product slowly seep into Marika’s veins via a long tube in which I pictured tiny cells charging forward on teensy running feet with swords pointing ahead. We had a little birthday party, and toasted to Marika’s new life, with Martinelli’s bubbly apple cider. After, in a trance, I washed my hands in the non-patient bathroom down the hall by the elevators, and sang softly, “Happy birthday to you, happy birthday to you. Happy birthday,” I choked, “dear Marika.” My eyes filled. My jaw quivered, “Happy birthday.” It was like whispering a prayer. Only I was downright pleading for my daughter’s recovery, “To you.”

The next morning, I returned early to the hospital from Hope Lodge. Marika sat in bed peering down at her chest, her head angled to accommodate her good eye. She was flushing out and disinfecting her own port as a nurse gave directions. Glancing up at me, Marika smiled. She looked ready to take on the world. Like she could deal with aggressive foreign cells, or doctors who dared to tell her No, or whatever else life might throw at her.
“Mom. I just got accepted into the University of Technology Nursing Program. I’m going to Australia next year.”

Two weeks later, on a Friday afternoon in early February, she was pedaling away on an exercise bike someone had left in her room. In sweat pants and a tee shirt, she almost looked like her old self, the athlete, the soccer player, the powerhouse-Marika who would sneer at my panting as we jogged around the block together.

The car was packed for my trip home for the weekend. I felt torn, as I always did, whenever I left Strong.
“Don’t forget to put your laundry in the new blue laundry bag,” I reminded her.
“O-Kay, mom,” she said, dismissing me.
“And remember to keep yourself hydrated. No caffeine drinks.”
“Mom, okay.” She rolled her eyes.
“And when’re you gonna take these pills that have been sitting here all morning?”
“Mom! Get a life,” she barked. “Go.” Conscious of my nagging, I silently picked up my computer and the old green bag of dirty laundry. I walked out the door. Without a look back.

Late that night I got a call. Marika had been admitted to the Intensive Care Unit with pneumonia, low blood pressure, and respiratory failure. She’d asked for me as it became more and more difficult to breathe, while her doctors and nurses awaited her consent to be sedated and intubated. Somehow, at home, before racing back to the hospital early the next morning, I slept. I know, because I wrote down my dream.

Reply to Robin

Duetting: Memoir 47

Sometimes I got my life mixed up with my daughter’s life. Like whenever Marika’s blood was drawn, I felt the pain. And once, in the ICU, I watched the monitor display her racing heartbeat for so long, I had to be taken downstairs to the emergency room as my own heart quickened and surged. Marika was getting the transplant, but I was getting a severe panic attack. As we waited for the transplant, I had to remind myself to relax. To breathe.

Late in the afternoon on December 1, 2010, the Roc Docs entered our room looking defeated. I worried, maybe something had happened to our donor. Doc Phillips was back, heading the team. But he did not look like his jolly old self. He sat down heavily and began with a long sigh.
“You are no longer in remission,” he said to Marika. Remembering how we’d postponed the transplant for her concert, I couldn’t bear to look at her.
“So there’s no transplant?” I heard a small voice say. Was it mine? Or Marika’s?
“Things have changed. We do have some good news out of all of this. We have a silver lining,” he said, recovering some of his cheer. “A silver lining,” he repeated. We waited, shaken. “The presence of leukemic cells makes you ineligible for the donor transplant. But,” he said with a dramatic pause. “But, remember that collection of stem cells we harvested from you last March, after the arsenic treatments?”
“Yeah. And then I got leukemia again three months later,” Marika wailed.
“Well, the new plan is to give you an autologous transplant using those cells, your own harvested cells, in the next day or two. This won’t cure you, since you had leukemic cells shortly after the harvesting, but it can get you back into remission briefly. And then you can have the donor’s-cells transplant.” I hugged myself and wondered how many more months until we were on the way to being cured. Relapse number three, and it wasn’t even summer yet.

The autologous transplant was a quick, uneventful procedure, so at the end of the week I went home to Ithaca. When I returned on Sunday, an electronic piano had been moved into the hospital room. New posters were taped onto the wall opposite the bed. The place had a cozy, lived-in feeling, a look that smacked of exuberant festivities.

“How was your weekend?” I asked, trying not to sound overly nosy.
“Mouth sores,” she said gloomily, reminding me of Eeyore from Winnie the Pooh.
“Oh, I brought you Vitamin Water. Maybe that will help.” I unpacked food items, fresh laundry, and mail. Gift bags and an assortment of drinks from her father and his wife already lined the windowsill. A big shiny balloon sailed above the end of the bed, which meant Rachel had been there. I rarely saw Rachel anymore as she worked weekdays. She must have brought the half-eaten chocolate cake that sat on the bed-tray too. They’d had a big party here all weekend, and I got to come back to Eeyore.
“Can’t talk,” Marika said sullenly.
“That’s not good. Are they giving you lozenges or something?” I asked.
“Can’t swallow,” she said, grabbing the croissant I’d placed on her tray.

In the next few days her cell counts rose to acceptable levels and we went home for the holidays. Our donor, the complete stranger who was going to share his blood, rich with stem cells, so Marika could live, would wait for us. Again. For the end of January. I wrote and rewrote a thank you letter to him that the Roc Docs would deliver. The holidays sped by quickly. I celebrated everything I could. Chanukah, Christmas, Kwanzaa, the Winter Solstice. I made tiramisu. Marika and Greg took me out to Bandwagon, a new Ithaca restaurant and brewery. He bought dinner. She gave me her new CD. I gave them each hundred dollar bills wrapped in new gloves, with Chapsticks and chocolates.

“It’s not finished yet. The CD. There’s another song to be added,” Marika said. She sat across from me wearing a turquoise head wrap, large hoop earrings and eye make-up. She had a party planned for after dinner. Her friends were home from college, and she was cramming what she could into her nights. During the days she came home from Limbo to do laundry and sleep. She’d creep down the stairs every so often, “Mom, ‘s there anything to eat?” I loved that time before the donor transplant. It was peaceful. Quiet. Like the calm before a storm.

Deep, dirty snow mounded up along the roads in Rochester on the morning we arrived back at Strong for a full week of chemotherapy and radiation. I piled Marika’s belongings onto a stray wheelchair in the parking garage. My own things remained in the car to be unpacked later at Hope Lodge, the cancer families’ home away from home. I stashed away her bathrobe, slippers, and toiletries exactly where they were in the last room, and then, just as I pulled up a chair, Marika handed me a three-page typed document. Fumbling for my glasses, I saw it was a list of all the places in Rochester I could visit for free.

“You’re not staying,” she said firmly. “I don’t want you here all the time anymore.” For a few stunned seconds I stood there trying to collect myself.
“But your cancer is my cancer,” I whimpered.
“Mom. Get a life,” she blasted back. For a few more seconds I forgot to breathe.

“Okay, but I’ll be here every morning for the doctors’ rounds,” I said, “and then I’ll leave until dinnertime.” She loved her dinners. “And I’ll be on the treadmill in the family room for an hour after rounds each morning, if you need me—need something.” Despite my bruised feelings, I was gaining momentum. “Otherwise I’ll be at Hedonist Chocolates, Wegmans, The Owl House Café, or Dinosaur Barbecue,” I added, naming her favorite Rochester eateries, “or any of the places on this list.” The plan worked for two days, and then the effects of the radiation kicked in and things started to get scary. On the third day, after the morning rounds, she flashed me her pathetic puppy-face as I got ready to leave.
“Aren’t you gonna stay?” she begged.

REPLY TO ROBIN

Duetting: Memoir 46

Cradling the bag of Marika’s ashes on Bells Beach, in the southeastern coast of Australia, I dip a hand into the cool graininess and it comes out chalky. The wind throws my first fistful of Marika back at me. It takes a few tosses to get the hang of it. Soon the ashes dance from my hand and curl away with the wind before they dust the water. It’s mesmerizing. It’s like playing. Like when I used to swing Marika around in the pond singing “Ring Around the Rosie” and “What Shall we do With a Drunken Sailor.” I would raise her up and dump her into the water. Ashes, ashes, we all fall down. “Again,” she’d beg, “again.” Now, sprinkling small handfuls, I watch smears of ash clouds gently rock on the water’s surface. Sand drags through my grasping toes as I slog through water that alternately swells and retreats. At each toss, the sweet grains of Marika drift slowly beneath the surface as the ash clouds rock and recede, and rock and recede, and rock and – BAM! Crash. I gasp. Cold. Wave. Almost knocked down. It fizzles away. Fast. But I’m soaked. Catching my breath, I look around. No one is near. If I drown or am swept away, I might never be found.

Half the precious ashes are gone. I hug the shrinking bag close to my pounding heart. Rogue wave. Enough ashes for today. I’m shivering. Still stunned. And wondering how I’m going to do this. How can I throw the last bits of my daughter to the sea and then return home to the other side of the world without her? And what will I do about Puppy? I pull the stuffed animal from the pack and pose it on a rock. Giving Puppy “back” to Marika is part of the mission. I’d planned to cremate Puppy on a beach, but fires are prohibited all over Australia except in protected barbecue pits. I’m squeamish around matches and lighters anyway. Marika was right. I’m a wimp. Scattering ashes is hard enough. But, barbecuing Puppy?

Shortly after Marika’s birth I had bought Puppy. Drawn to her myself, I gave her to the daughter I loved more than myself. Puppy went everywhere with Marika, and may even have gone to Australia and back. Puppy was always my key to communicating with Marika, often my only chance of swaying her to see reason. My words came out differently when channeled through Puppy. Puppy didn’t say, “Don’t you have homework to do?” She said, “Can I do homewawk wiv you?” How can I destroy Puppy? Ragged love-worn Puppy. With her long floppy ears, she often got mistaken for a rabbit. She looks a little haggard now in the sun with her saggy stuffing. Propping her upright on the rock, I remember regularly fishing her out of the hospital bed and posing her so Marika, returning from radiation, would find her on top of the bed, hunched over a tea mug with a napkin and cookie, like Puppy had a secret life of her own. I snap Puppy’s photo. Okay, what a dope, what the heck, it’s just a piece of stuffed polyester. But no, Puppy is not only my connection to Marika. She’s a part of myself I can’t let go of yet.

The trip back across the beach and up the long sets of stairs is lonely. But by the time I reach the heathlands, I feel Marika riding piggyback on my back again. She has fallen asleep now. Her head rests on my shoulder, and I hear tinny music sounds from her iPod ear-buds. Plodding on under the weight of her, I think about my own time for being carried. What did my own mother carry me through? That day in the waves at Jones Beach, when I lost hold of her hand, did she panic? Did she know, for a brief time, how it feels to lose a daughter? Was she plagued with thoughts of what if, what if, what if, like an ongoing heartbeat? It must have been hard this past year for my mom to see me so empty, carrying around only memories of my only daughter. She can’t stand to see me grieving. Maybe that’s why she tells me to get over it.

It boggles my mind to consider all the caring and carrying that every person who ever lived represents. Each one of us was carried, fed, and tended to. In one fashion or another, someone keeps a child from ruin. Then comes growth and change as the young life evolves into its own person. And finally comes separation. Into two strong, independent but deeply related beings. At some point the child begins to carry herself off. And the mother who held tight begins to release. There is a healthy split as mother and child divide into two. This is something one should be able to count on: like the tides, like summer following spring. Like your children outlasting you. You go through the normal processes of life and then—separation. But that was interrupted. Marika died. Separation, when a mother’s tug to hold close is not opposed by the daughter’s push to be free, is like fog. You vaguely sense something moving but cannot grasp exactly what or where it is. I envision all the love I invested in Marika wafted up into some universal cloud, a collective care blanket encircling the earth.

When the first anniversary of Marika’s death approached, my family and friends expected me to be done grieving. It was time to let her go, they said. But I wasn’t ready. I wanted to keep her. I could hold forever the memory of unending power struggles with my beautiful, cranky, uncompromising daughter. Besides, she had already written how to live on: she was going to carry her friend Jake who died. So I would find ways to carry her. With me. For the rest of my time. Until I myself must finally be carried out.

I carry Marika out again the next day. Her ashes. And since it’s a Thursday, there are no public buses coming or going in the little town of Torquay. If you have no car, you can only come to or leave this place on a Monday, Wednesday, or Friday on the public V-Line buses. Eager to start the next part of my journey, I book a spot on a private tour bus coming in from Melbourne in order to get to the other end of the Great Ocean Road. Which is how Marika traveled, hopping on and off a tour bus at a bazillion different stops.

The tour bus takes me to the Great Otway National Forest where giant ferns grow in thick moss, and ancient trees with trunks large enough to live in, climb to the sky. There are endlessly cascading waterfalls. This place is magical. It is dizzying. I smell the earthy magnificence of eons of time. If we were time travelers, Marika and I would be colliding into the same brief moment. She was here only two years ago, standing in the buttresses at the base of a primeval tree, posing for a photo. Which tree? From the elevated boardwalks that wind through the dense rainforest, I look around at the huge stands of mountain ash and myrtle beeches estimated to be two thousand years old. Gazing up and down, I see how infinitesimally minimal our being here is. My love, my grief, all the things that consume me are like one single tiny spore on a fern in a massive gully of ferns that have been reaching out for thousands of years from under immense forests of towering trees. Time is the endless sky beyond the forests. I cannot fathom it.

“The bus,” a fellow passenger points to his watch. Last to board, I fall into my seat as the bus takes off. It stops at a convenience store in the middle of nowhere, for lunch. It stops at a site where wild koalas hug eucalyptus trees, and bright-colored parrots land on my head. We visit lookouts, and learn the legends of the Shipwreck Coast. And towards the end of the day, the bus pulls into the petite town of Port Campbell. It drops me off at the Loch Ard Motor Inn, home base for the third leg of my journey.

Two women laugh heartily in the back room. I wait at the desk, listening a minute before I call to them. One comes out smiling warmly at me. That’s all I need to feel at home. And in my new room, I assemble the little altar on the counter under the hanging TV, and pose Puppy hugging the bag of ashes. The chocolate is gone but I lay out colorful ticket stubs from the bus tour, and the photos. Holding the old photo of Marika on Bells Beach, I touch the bag of ashes.
“Thank you, Mareek. All those gifts I gave you, all the best things, you’ve given back to me now: Suki, the cowboy boots, your love of writing, Puppy, Australia, … so much.”

I’d given her life. And maybe, in some way, she was giving life back to me too.
“Mom, get a life.” Maybe that’s what I’m really doing here in Australia.

REPLY TO ROBIN

Duetting: Memoir 45

“Why would you want to go THERE?” ask two stewardesses on my flight from Sydney to Melbourne, when I question them about transportation to Geelong, the gateway city for my next destination, the Great Ocean Road.
“To scatter my daughter’s ashes,” I gush out, in tears, overwhelmed by the first bit of interest anyone has shown in me since I got to Australia. I’m also a little terrified, having no plan for getting from the Melbourne airport to Geelong to the tiny town of Torquay where I have booked a room. This is not how I like to do things, not knowing what’s next.

From the airplane to the Melbourne shuttle, two train rides, two buses, and long walks dragging my rolling luggage behind, I am making my way, inch by inch, with direction-seeking and extended waits between each step. It takes all day to get from Sydney to the remote town of Torquay on Australia’s southeast coast. This second part of my journey is filled with questions no one back home could answer. Marika’s friend Carla would only tell me the Great Ocean Road must be discovered for oneself.

The first I’d ever heard of the Great Ocean Road was in April 2010 when, in the middle of her trip, Marika had phoned. Overjoyed to hear her voice, I was caught off guard. I thought she was homesick. I should have known better. She was calling to ask for extra money. To rent a car for a trip along the Great Ocean Road. It was “what everyone does on holiday from Melbourne.” I told her, No. So she and Carla took a bus.

Now here I am, two years after Marika’s trip, on a V-Line regional public bus, racing along a two-lane winding road that hugs a corner of Australia’s dramatic southeastern shoreline. The road ties together one hundred fifty miles of remote coastal towns and popular resorts. Prime surfing territory. I can’t take my eyes off the teasing blue sea which one minute seems ahead of me, just beyond a stretch of beach, then disappears and is suddenly smack below as we speed along atop high cliffs. We wind by rocky gorges, rolling foothills, secluded bays, and shipwreck coasts with towering limestone formations. Built as a memorial to the fallen soldiers of World War I by the returning soldiers, and later the jobless of the Great Depression, the Great Ocean Road is one of Australia’s National Heritage Sites. Tour buses from Melbourne regularly run its length, stopping at the most dramatic spots, the stunning seascapes in Marika’s photos.

Finally arriving in Torquay at the east end of the road, in a new motel room I reconstruct the altar of photos, chocolates, and stuffed Puppy, around the box of ashes. Then, wanting to locate the trailhead before dark for the next morning’s mission of ash-scattering on Bells Beach, I question the motel’s friendly bartender. No one else is around at that moment. So he closes up shop and leads me to his car. I hop in. He’s not really a stranger, I tell myself. But I sit poised for escape anyway. He drives a short distance down a deserted road.

“Yer sure ya want to walk all the way from the motel ‘n the morning?” he asks, regarding me like I’m crazy. “It’s a long way.” I don’t want to look at him. What am I doing in this bartender’s car anyway? He keeps driving.

“Nine kilometers, that’s only like six miles. Not much elevation change. Why not?” I say with a rising cloud of doubt. He shakes his head. I must look old to him, this kid running the whole show here. A hotel, motel, gaming room, bar and bistro, all in one, the Torquay Hotel Motel is the liveliest place in this little town. Everyone including this bar-boy seems to be Marika’s age, maybe younger. “I can walk back from here, thanks,” I say once we reach the trailhead. My sense of direction flustered, I ask him, “Which way back to the motel?” just to be sure.

Back at the bar and bistro later, I borrow a knife to open the sealed box of ashes, to let Marika breathe. And to make sure I won’t be stuck way out on the beach the next day, unable to open her box without tools. It is my first time meeting her ashes. With held breath and quivering hands, I pry gently at the box. It opens easily, like she’s pushing the lid from inside. She’s a trillion tiny shards, like cool white sand on a beach at sunset. In a plastic bag. In a bewildering way she’s still beautiful. I stare at her. At what’s left.

“The internet’s crashed,” says the Hotel Motel bartender when I seek him out once more, to get online. “I’m sorry. This never happens. I’ll refund some of your money.”
“No, that’s okay,” I say, thinking I may have killed the Internet connection myself. I’d tried to google “how to scatter ashes” and the little iPad went blank. Connection disappeared. It went the way of my family and friends all during the past year whenever I’d mentioned anything about Marika or ashes. Or death.

I didn’t have much faith I could learn efficient tossing techniques online anyway. I’d simply have to stand with my back to the wind and wing it. Tossing ashes. Flinging ashes. Ashes are typically “scattered” or “spread” if not kept forever in an urn on the mantle until someday some distant young relative has to figure out what to do with them. Marika had requested her remains be “scattered in Australia, if possible,” which gives me a lot of leeway. Spreading means smearing, like what one does with peanut butter or sunblock. So I’m glad she specified scattering. It gives me more a picture of sprinkling small amounts. Either way implies a distribution over a large area or several areas, broadcasting here and there, as opposed to just dumping it all in one place. And Australia is a vast continent, almost as big as the US. Early on I decided to leave ashes in the places I knew from her photos that she’d been happy.

The next morning, I load Marika’s Ithaca Track and Field drawstring backpack with water bottles, a peanut butter and plum sandwich, and chocolate bars I’d hunted and gathered from the local grocery the evening before. I add maps, Marika’s stuffed Puppy curled into her baseball cap, and the ashes. But when I put the pack on, the box of ashes chafes at my back, giving me visions of Crusaders with heavy crosses gouging deep gashes across their backs and shoulders. I take the bag of ashes, maybe six pounds, out of the black box and gently stuff it back into the pack, leaving the box behind. With a full, heavy backpack I step out the door to a blinding sun. Quickly the bag of ashes settles into a rounded rump shape that bumps behind me as I walk a few hesitant test-steps around the parked cars. I imagine I’m carrying a life-sized Marika piggyback style. I can almost feel the swish of her heels swinging by my knees.

“Mom. Let’s go.” She kicks and nudges me in the direction of the trail. And so we’re off to Bells Beach. A long walk with a lot of weight, but all I need to do is keep on the right trail and be wary of the high tide at four-thirty the bartender had told me about.
“Oh, I’ll be done way before then,” I’d responded. Then he’d warned me to watch for the occasional big rogue wave, and I’d stifled a gulp.

Now, tall dark Norfolk pines line the beaches I pass. A long boardwalk over shallow water bounces under me as I tread the moist planks. When I reach solid ground, the landscape changes rapidly. Forest turns into scrub, and then into sandy coastline. Soon the path climbs. It becomes gravelly beneath sky that is dauntingly blue and forever. Under the hot sun, I lumber over rocks and cliffs, along crunchy red-sand footpaths, and through heathlands. Grasses, scattered trees, birds flickering in low woody bushes. Scrubland. The Surf Coast Walk twists and breaks off occasionally for lookouts. I whisper nervously to Marika’s ashes each time the trail splits. When it hangs over the shore, visions of falling from crumbling cliffs crash in my head. And I assure her—her ashes—we’re okay.

There are surfers out in the distance. A dog sits in the teeming shallows waiting for its owner. So much of surfing is waiting. You wait to be in the right place at the right time, wait for the right wave, and then fly with it. Hold on when you’re tossed, keep on top, re-find your footing when it’s lost, and then go the distance. As far as you can. And scramble back up again when you get dumped. And wait some more. It reminds me of living with cancer. Am I a cancer survivor, I wonder? Marika got wiped out by cancer, but I survived. Watching the surfers, I wonder how they don’t get completely mauled in the crashing waters.

Three hours later, I climb down several sets of wooden stairs and stare at Bells Beach, the exact spot in the photo. The photo where Marika stands smiling, holding her arms out like she’s hugging the world. Only it’s an empty landscape before me now. It’s supposed to have her centered in front of the jutting point, arms lifted outward. Glued to the spot, sweating, I wait like I’m expecting to be met by her ghost.

An Asian tourist, bogged down with heavy cameras, passes by after a while and I give him my borrowed, pocket-sized point-and-shoot to take my picture in Marika’s place as I try to duplicate her pose. When the tourist is done and walks off, I am left alone on the beach. A kick at my back tells me Marika wants out of the bag, so I remove it from my pack, open its twist tie and inch closer to the water. Fears of waves and the incoming tide clash with the realization that I need to wade into the water to release the ashes. This is what I came all this way for, I tell myself. I can’t just spill Marika’s ashes onto the sand. So I kick off my sneakers, roll up my pant-legs, and cautiously slip into the seething surf. In knee-deep water the waves barrel into my body, soaking me almost to my waist. I brace myself against the poundings and try to ignore the stirrings in my head, “Don’t go out too far” and “Never swim alone.”

REPLY TO ROBIN

Finding Life After Loss

duetting with my daughter. who died. ROBIN BOTIE

Author Archives: Robin Botie

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