Tag Archives: cancer companion

Duetting: Memoir 32

Duetting: Memoir 32 Robin Botie of Ithaca, New York, photoshops a photo of Marika Warden taken by Ray Possen that depicts the lifesaving dog that was bought as a cancer companion.

“Mom, why can’t I get a puppy?” Marika asked, as we made our way to Rochester for a routine bone marrow biopsy.
“Mareek, I don’t even want a houseplant right now. We still have a lot of time in the hospital and then you’ll be going off to college again. A dog just doesn’t fit into our lives.” She sighed heavily and put her earphones back on.

Laurie called that evening.
“Robin, I’m really worried about Marika. She is so depressed. I’m serious. She needs a puppy.” (I learned later that Aunt Laurie had already promised her a puppy).
“She has a cat. And guess who ends up feeding it all the time and having to find cat-care whenever we leave home?” I countered.
“Her life depends on this puppy,” she stated, in the same tone as the doctors who insisted her life depended on getting a bone marrow transplant. In our little triad, no one of us could fight the other two united. So I finally relented. We found Suki online, near Rochester, the only female in a small litter of jolly Havanese puppies. We visited her on the way home from a day at the hospital. She was round, fuzzy, and tough, with an attitude that rivaled Marika’s. Still too young to come home with us, she lit Marika’s eyes up and recharged her heart.

Marika’s spirits were lifted even more when she got her driver’s license back.
“Mareek, I need to be in the car with you when you drive the first time or two,” I told her. The Toyota Avalon my mother had given me years before had seen better days. I’d let Marika keep it at college for her second semester. CDs and musty clothes were scattered over the seats and floors, and a cotton-candy air freshener dangled in the windshield. Marika was one of the few women with wheels in her crowd, and the car was a gas-guzzler, so an old coffee can labeled “Donations for Marika” lay conspicuously on the passenger side floor.
“No, Mom. Get a life,” she hissed, horrified at the thought of my monitoring her driving.

Unprepared for this reaction, I yelled, “Mareek, I’m about to finally GIVE you the car but you haven’t driven in months and I’m not gonna GIVE you the car until I know you’re not gonna drive it into a tree.” I gulped, surprised at my own resolve, and even more by her sudden cooperation. Later that evening she came downstairs bubbly, wearing eye make-up and a beaded necklace, a short skirt and strappy little tanktop under her worn-out gray winter coat.
“I’m recording with Russ tonight,” she shared as we negotiated the logistics of the driving. It was still light out as we pulled up to a familiar house and she parked the car.

“Mareek, I know this place. We came here for a party when you were four.”
“It’s Russ’s house,” she said, like I should have known.
“Oh, THAT Russ.” I recalled a rambunctious four-year-old flying down the banister. “I remember him. I took flying lessons with his father at the East Hill Flying Club before you two were even born,” I said. Unimpressed, Marika shot out of the car. I took over her warmed driver’s seat.

“Call me when you want to be picked up,” I shouted out the window, adding something about practicing night driving. She was gone. But her perfume, a hint of lily-of-the-valley mixed with a tanginess reminiscent of mustard, lingered after her as I turned the car to go home. I would wait for her call while she sang for hours with Russ, a percussionist who recorded his music for her so she could uncover melodies and create lyrics. She was proud of her first efforts and shared them with me in the beginning. Making music became her passion. Then it became one more secret, another thing that didn’t include me.

On the day the puppy was finally old enough to come home, the breeder held it up to us. One of the puppy’s eyes drifted sideways. Its top hair was pulled up tightly in a pink barrette. Marika and Suki curiously examined each other face to face.

“This hairdo has to go,” Marika said, pulling the barrette out as soon as we got in the car. Settling Suki in her arms for the long ride home, she cuddled and cooed, and they both fell asleep. Driving, I remembered the first times bringing my babies home. And I wondered if someone with no immune system should be housebreaking a puppy.

“Let’s go potty, Suki. Where’s your potty, Suki?” I chanted in the driveway. For weeks, I took Suki on extra walks so she wouldn’t ‘go’ in the house. I thought we’d agreed to crate-train the puppy, but one morning I brought a breakfast tray up and discovered Suki in the bed, sound asleep, nestled between the pillow and Marika’s chin. The crate sat on the floor, door shut, under a pile of dirty clothes.

When Marika’s friends went back to their colleges after the holiday break, we went off to puppy training classes at PetSmart. We sneaked Suki into the physical therapy sessions and the local hospital for the Monday morning blood draws. The nurses in the Hematology Lab fussed over them both, bringing doggie treats and cans of soda. The undercover slinking about with Suki was nerve-wracking for me but such a thrill to Marika that I allowed it to continue for months. Until the day we got busted. Suki was too big to fit in her travel bag by the time some hospital staff reported us.

Suki seemed to be the lifesaver we needed. Back at the house, we couldn’t help but laugh as Suki climbed to the tops of couches, to the shoulders of anyone sitting on the couches, and to Marika’s bed where she rested happily among the stuffed animals. And one day while Marika slept, leaving me to dog-sit, Suki and the cat cornered a mouse. When the mouse darted toward her, Suki gave a surprised squeak, caught it, and threw it high into the air. The cat and I watched in awe as the mouse fell down in the middle of us, dead. I tried hard not to love this adorable dog that was to, one day, leave home for good with Marika.

 

Duetting: Memoir 18

Robin Botie of Ithaca, New York uses Photoshop to illustrate the journey with her daughter through the wilds of cancer.Depression affects the immune system. To survive bad luck, boredom, painful procedures, endless blood transfusions, and long hospital confinements when it seemed everyone else was out dancing, I conjured up all sorts of distractions for my daughter. Part of my mission was to make something magical happen each day. So I pretended the hospital was our summer resort. The lobby was an esplanade, perfect for people-watching, with the prevailing aroma of roasted coffee, and a player-less piano trilling away. The information desk was our concierge, offering restaurant menus for takeout dinners. Complimentary prune juice cocktails and ice cream cups were always available from the unit kitchen, a few doors down from our somewhat-less-than elegantly appointed room.

“If you could makeover this room, what color would you paint it?” I asked, wanting to draw Marika into my fantasy. She rolled her eyes at another of my stupid questions.
“Orange,” she grunted.
“What about the floor? Orange too?”
“Carpet.” Then she added, “And I’d make this a double bed with a real mattress.”
“I’d put a fridge in over there,” I said, grateful to get her engaged.
“Yeah, and a bar. I could use a martini.” Speechless, I looked at my just-turned eighteen-year-old daughter and wondered how many martinis she’d had.

When allowed off the unit, we escaped to the meditation room with its cool blue-green lights and crocheted blankets that hugged two stuffed chairs. I wheeled her to an indoor courtyard near the far-off dentistry wing. We roamed the endless hallways, searching for the chapel in the depths of the massive Strong. We tiptoed to the newborn babies’ window and peeked through the slats of drawn blinds to watch the tiny wrapped bundles wriggling or peacefully still.
“You were the most beautiful baby, Mareek.”
“I know,” she said, engrossed in the newborns.

“Where are they?” She growled impatiently. We were stranded in the radiation department, waiting for the transport team to take us back to the room.
“Okay, it’s been over ten minutes. I’m kidnapping you. Hold onto your hat,” I said, whirling her wheelchair around.
“Mom! Whoa, what are you doing?” she sputtered as we zigzagged wildly down the hall. “Do you know where you’re going?”
“No, but I bet I can get us back by lunchtime,” I said, surprising myself by my desperation to stave off negativity and the ensuing insults to Marika’s meager immune system. On the way to the room, we meandered through the fourth floor pediatric hall where the walls were painted in bold colors and plastered with distorting mirrors and protruding animal sculptures that begged to be interacted with. Then we were at the door to the Ronald MacDonald rooftop playground. It was deserted so we sat outside in the middle of the chain-link fenced-in yard, four floors up. From my backpack, I removed two tiny containers I’d carried around for days for just this opportunity. We blew filmy, fragile bubbles that flew off into the wind.

“Should I fetch cooked sushi for dinner tonight?” I asked in between bubbles.
“I want steak,” she said, adding “for lunch.”
“Well, if I get lunch take-outs we’ll have to eat hospital food for dinner,” I reminded her. That was our deal: eat hospital food for breakfast and lunch, eat well for dinner. “But,” I offered, “I might be talked into sharing a frozen latte from the lobby after a hospital lunch.” She scrunched up her face and declared,
“Double iced mocha with chocolate ice cream. I want my own.”
“Deal. Do you think we’re locked out?” I asked, nodding toward the door that had closed behind us when we went outside, a last-ditch effort to throw in some further intrigue.

Friends were the best diversion. They occasionally made the two-hour trip from Ithaca to Rochester. Cassie, Carla, Shoshana, Golda, Jeff, Julie, Lamarr, Rachel, and more. Cassie brought an enormous stuffed dog. Carla brought Silviana. Julie always climbed into bed with Marika. There was lots of pizza and Chinese food. And laughter. I left the room most of the time when her friends came. But not before I scanned them for signs of pinkeye or colds.

As it got closer to college orientation, the visits died down. Except for Rachel.
“How’s she doin’?” Rachel asked from Ithaca, ninety miles away.
“Well, it’s funny you should pick this moment to call. She’s in radiation right now. She had a high fever last night and we’re waiting to see…”
“Well tell her to cool down,” she said, “and tell her I miss her.” They called each other “Wifey.” Rachel, a year older, had recently passed her Emergency Medical Technician training. When not in college, she worked for a local ambulance company. I felt totally comfortable sharing the details of Marika’s condition with her. Especially since she always found us, whenever Marika’s health crashed, wherever we landed.

Several times a day, I rubbed Marika’s feet. She didn’t like asking.
“Mom.” She would shamelessly wave a foot in my face and frown pathetically. Foot rub.
“How do you do that with your mouth?” I asked, trying to mimic her pout. “It has to be a short one. I have to write a paper for my class.”
“Why don’t you pull the cancer card?” she yawned.
“What cancer card? What’s a cancer card?” I asked. She smiled with closed eyes, and wiggled her toes in anticipation of the foot-rub.    
“Just tell your teacher your daughter has cancer, Mom. Then you won’t have to work so hard.”

Marika never had to do much to get me to rub her feet; it was the only time now, other than grasping hands when she got shots, I could touch her. So I rubbed her feet when I was nervous, when she was tired, after breakfast, before bedtime. It was a dance of my hands over her soles, a meditative prayer tracing around her ankle bracelet, holding her heels, pulling gently on each of her painted toes. My thumbs lightly pressed butterfly-indentations over the balls of her feet. And finally, I’d slip-slide my palms along the curves of her arches, massaging those sweet feet over and over as though I could knead the cancer out. On hearing bad news, I’d grab her feet. It was my way of hugging her.